CARE PARTNER RESOURCES HKC Foundation for Parkinson's is excited to share some wonderful resources (FREE OF CHARGE) that we discovered because of a meeting between several members of the HKC board and Amy Baruch and Ryan Biagini of Hospice of the Piedmont. They have a plethora of resources for all types of caregivers, and we welcome their partnership! They have a BRAND-NEW WEBSITE that launched this past week! All they need is your name and email to cater resources to your needs. Alesia has already signed up and we encourage you to do the same. https://caregivingcompanion.org/ For those of you that LOVE to read they host a quarterly "Lunch Break Book Club" that sounds amazing! Books are free to the first 15 who sign up and the next informational meeting is in March. The kickoff is in April and the book discussion is in May (meets the 2nd Thursday of the month). SIGN UP HERE! HOSPICE VERSUS PALLIATIVE CARE Speaking of Hospice versus Palliative, let’s make sure we know the difference. We tend to become terrified when we hear the word hospice. I remember when my dad started receiving Hospice care, I thought that meant he was going to die the next day, and I was FREAKED OUT. Below are the guidelines for both kinds of care, but they are not etched in stone. Someone can receive Hospice care for up to two years (assessment is performed every six months to determine eligibility AND folks can move in and out of hospice care. Whether Palliative or Hospice, they are sources of support, compassion, care for you and your loved one. ORTHOSTATIC HYPOTENTION (sudden drop in blood pressure) As with other Parkinson’s symptoms, you may or may not experience a sudden drop in blood pressure, aka Neurogenic Orthostatic Hypotension. If you are experiencing symptoms of low blood pressure upon standing, you may have neurogenic orthostatic hypotension (NOH). - check out this fact sheet from the American Parkinson’s Disease Association and keep it in your Parkinson’s tool box, just in case: Neurogenic Orthostatic Hypotension in Parkinson’s Disease. Comments are closed.
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AuthorCoach Betsy, Archives |