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HKC Newsletter

One of the strange things about Parkinson’s is that while every journey is unique, there is also an immediate understanding between people living with it.

6/7/2026

 
In Larry Linton’s words - From Online Conversations to Real Conversations 
I have just returned from attending the World Parkinson Congress in Phoenix. 


And like many meaningful experiences in life, it is difficult to fully capture in a few words. 
  • Yes, there were exceptional speakers. 
  • Yes, there was Important research. 
  • Yes, there were Insightful discussions about treatment, exercise, cognition, advocacy, and the future of Parkinson's disease care. 

But for me, the most meaningful part of the Congress was something much simpler: People. 

One of the strange things about Parkinson’s is that while every journey is unique, there is also an immediate understanding between people living with it. 

Certain things do not require lengthy explanation. 

The uncertainty. 
The adaptation. 
The humor. 
The frustration. 
The resilience. 

People simply understand. 

And there is something incredibly powerful about being surrounded by thousands of individuals who all, in one way or another, are navigating similar realities. 

Over the past year, writing these blogs and engaging with this community has created many meaningful conversations. 

Messages exchanged late at night. 
Shared stories. 
Encouragement. 
Support. 
People reaching out from across North America and beyond. 
READ MORE

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    Author

    Coach Betsy,
    Rock Steady Boxing Certified Coach, Certified Parkinson's Disease Fitness Specialist, ISSA Certified Personal Trainer

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  • Home
  • About
    • HKC in the Media
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